Decision on Spinraza drug leaves patients distraught and distressed – Crowe
Dublin South West TD, Seán Crowe, has said he is deeply concerned that the Health Service Executive has decided that it will not sanction approval of the life changing drug Spinraza (Nusinersen) for sufferers of Spinal Muscular Atrophy on the grounds of its high cost. The Sinn Féin TD strongly criticised the decision and expressed […]